Welcome to TRIO . . .
<<
TRIO Ventura Chapter Rose Parade Float decorating team >>
(see the award winning float and story below)
. . . voice of the transplant community
TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
TRIO News (click on an item to read the details)
(click on photo for full story and more photos and even watch a video of the float in the 2010 Rose Bowl Parde)
TRIO National News
- Leadership Summit - hold
the dates of April 30/May 1st open for a special Leadership
Summit conference being planned for TRIO Chapter Presidents and
other leaders or leader candidates to be held in Philadelphia.
More details coming, but if interested, block out those dates and
register for future notifications at info@trioweb.org
- TRIO
Scholarships list updated: click
on this title to check out the growing list of scholarship
opportunities, both young student and some adult grant like
scholarships for medical professionals, even one international one
(also, pass others along for including on this list if you know of any)
- TRIO Public Policy network established: under the
leadership of LI TRIO's
Mike Sosna, each TRIO chapter now has a local Public Policy leader
who will be working with Mike in carrying out TRIO's important mission
of Education and Advocacy at the local chapter level. Ask your
local chapter President who that person is, or volunteer to be that
"point person" if you are passionate in this area.
- TRIO
welcomes new national Board member Valen
Cover (click on name to see photo and personal background) - Board elects 2010 officers
at Annual Meeting:
At its October 24th meeting held in Philadelphia's Gift of Life Donor Program offices, 2010 officers were elected as follows...
- JT Rhodes, President
- Elizabeth Rubin, Vice-president
- Susan Pincus, Secretary
- Jim Gleason, Treasurer
- TRIO Board open to ads:
Keeping up with the times and following the example set by other non-profits in these tough economic times, TRIO's Board has approved acceptance of limited advertising in its communications resources of the LifeLines newsletter and its TRIOweb.org web site. With recent cut backs in many traditional donation support sources this new revenue will allow TRIO to maintain strength in carrying out its critical mission of service to the transplant community. For detail on TRIO ad opportunities, go to TRIO Ad Facts or call the national office directly. - (Dec) TRIO's new "Transplant Presentation Library" expands to ten program titles in January for chapter meeting and individual member use
- TRIO votes to support "Power of Two"
October tour of Japan promoting organ donation by co-author TRIO
members, Stenzel twins, Ana and Isa, as a Community Partner -
click on that title above to check out their Tour story and
the latest Tour updates
- TRIO Ventura member/author Elizabeth Pratt (with Ron Taubman) featured in CBS TV interview <-- click to view video clip - and her story in print: Organ donor allowed ailing ex-ballerina to dance again
- TRIO Philadelphia
chapter partnered with OPO (Gift of Life Donor Program) to host "Three Rivers" premier showing event to
promote organ donation October
4th. And now you can watch Three Rivers full
episodes on-line (<-- click here)
- TRIO
Manhattan chapter to host 16th annual dinner
dance October
23rd honoring
many special transplant supporters.
- TRIO
Jacksonville TV news clip
coverage of Donate Life Day 2009 and their Donate
Life Day reported in blog
- TRIO Japan quoted in article (a PDF file download
76kb): A
Decade On, Organ Transplant Law Falls Short
- In an article
published online on October 23, 2009, in The Journal of Heart and
Lung Transplantation, physicians representing the International
Society for Heart & Lung Transplantation (ISHLT) Infectious Disease
Council issued an advisory for all programs in cardiothoracic
transplantation. To download this 7 page (PDF file) technical
article
click here --> Advisory
- LA Times 10/10/09:
Opinion article: Healthcare
reform without drug price controls? That's sick (<--
click to read article) Post
your comments on the bulletin
board
- 9/2/09: OPTN/UNOS releases guidance regarding H1N1 and Implications for Transplantation
- AP 8/13/09: Generic form of PROGRAF (i.e., tacrolimus) released.
- 8/13/09: Astellas Prograf Value Card Program offered to save patients using Prograf up to $100/mo for each Rx for one year. (Note: not available for all plans, especially for government plans; call your Rx provider to ask about using it with mail order, but reimbursement forms are available from the program if your mail order company doesn't accept it directly.)
- Roche Offering $100 Coupon Card for
Cellcept users
- 5/9/09: Generic
form
of Cellcept (i.e., Mycophenolate Mofetil) released
- "Donut
Hole" Rx cost calculator available: Check out ways to reduce your
out of pocket
Rx costs with this
powerful on-line tool
- Flying with
a double transplant (Jan 2010) - read bout TRIO
member, David Grier (liver recipient in '97 and liver/kidney transplant
in '07), and his flying goal achievements post transplant (click to
download the inspiring JPG article).
- AP
8/13/09: Tony
Huesman, the world's longest surviving single heart
transplant recipient (nearly 31 years) died at age 51 of cancer.
Shortly
after receiving his new heart, Huesman wrote these words: "It doesn't really matter how we die, when
we die, or why we die." "What really matters though, is how
we live in the hearts and souls of
those we touch along the way."
- TRIO Nations Capital chapter
founder
and member, Claude Brady (heart transplant 6-89) is featured in this
study report (click to download the 712kb PDF document -->): The First Patient Clinically Diagnosed with
Hypertropic Cardiomyopathy
New Legislative Action/Report web section added
One of the many benefits of TRIO membership is joining as a unified voice up on Capitol Hill. See the new section under Communications/Legislation( <-- or just click here) for a report on current national legislative action from TRIO members working on your behalf.
TRIO partners with Transplant Buddies.com for enhanced web forum resource
TRIO President, JT Rhodes: In support of our members, TRIO announces a newly formed partnership with Transplantbuddies. Their message board is very active and contains great info and discussions of interest to all transplant recipients.
Members can go to our bulletin board link from this home page (see navigation link above) where they will have the option to still use the existing TRIO BBS or, link and post on transplantbuddies. TRIO encourages all members to use this opportunity to ask and respond to questions about transplantation.
Special note: When registering, TRIO members should use "TRIO" in their username (such as "JTRTRIO") so that all members of transplant buddies will know that they are TRIO members.
TRIO issues formal Position Statement on Incentives for Organ Donation
TRIO's Board of Directors has adopted a Position Statement that TRIO supports the concept that reward for organ donation must be studied in America.
- Read TRIO's official Position Statement (<--click to download 76k PDF document)
- Read Press Release issued on November 19, 2008 (<--click to download 76k PDF document)
- Click to go to Bulletin Board topic to post your comments
"The Gift That Heals" released in new audio version and "The Nicholas Effect" comes out in 15th Anniversary Edition
To read Reg Green's latest beautiful article,
click on this link --> Donor Family Treated Like Royalty.
For many who wanted to know more after hearing that his book, "The Gift that Heals," was such a hit at the ITNS/TRIO Symposium in St. Louis with TRIO buying 500 copies as thank you gifts for nurses arond the world (see event story below), it tells the inspiring stories of families at every stage of the transplantation process.
Updates:
The Gift That Heals
has just
become
the first transplant book to be released in an audio version, AND the
print version of Reg Green's original book, The Nicholas Effect,(<-- click for description) has just been re-released with additonal updated content in advance of the 15th anniversary of that fateful day when Nicholas was shot in Italy, Sept 29th. "Congratulations Reg!!"
... for more information contact www.authorhouse.com .
TRIO 2008 Fall Conference with ITNS Huge Success
Click on the article titles below for the full story or to download the handout...
- Article: TRIO Holds 2008 Symposium in St. Louis, MO
- Article: TRIO Delivers Global Thank You's to ITNS Nurses
- Article: TRIO Scholarship Winner's Impressions from the 2008 Conference
- Article: TRIO Thanks Symposium Sponsors
- Article: Thank you letters posted for nurses around the world to read (last updated 1/9/09 with several hundred eventually being posted)
- Article: Reactions to Thank You letters
- Download: Presenter, Vanessa
Underwood's Fitness Handout (190k PDF)
Transplantation in the News
World News Headlines on Organ donation and transplantation
Every day transplantation makes the news in many places around the globe. To help you keep up on the most important and interesting of those stories, we regularly update the following news links:
Current articles: click on titles to read that news)
- Breakthrough
in heart preservation for transplant could extend out of body time to
14 hours
- Breakthrough
in Donor Lung Preservation and Restoration Could Double Number of Lungs
Available for Transplant
- New
Device Preserves Transplant Organs
- UNOS Releases Statement Regarding "Black Market" Organ Arrest in New Jersey
- About
That New Jersey Organ Scandal
It’s not surprising when 80,000 Americans are waiting for kidneys - 3-D Scaffold Of Living, Beating Heart Cells May Lead To Viable Strategies Of Transplanting Cells Into Diseased Hearts
- Donor Lungs Made To Breathe Outside Body
- New article in the FASEB Journal shows two-way exchange of molecules between donor and recipient
- CVS slashes generic drug costs, escalates price war
- AST Employee Leave & Organ Donation Program (a great set of resources for taking action!)
UNOS Calling for Public Comment on Proposed Policies
"Your chance to be heard!"
UNOS policy proposals are continually being offered for public comment, now in a more user-friendly format. These proposals highlight proposed changes by the many committees that support UNOS in its work and policy making process. After a public comment period ends, the sponsoring committees review all feedback and make necessary modifications before passing their final recommendation on to the OPTN/UNOS Board of Directors who in turn review and vote on these proposals at their quarterly meetings, leading to implementation of those that gain such final approval. You are encouraged to become part of this process by offering comment when invited by those announcements which are listed on the http://www.optn.org/policiesAndBylaws/publicComment/proposals.asp web site, or Click here to read proposal details and comment .
Thank you,
- Mike Sosna
Chair, TRIO Public Policy Committee